Recently some of you must have heard the Sleeping Beauty
from Pennsylvania, a seventeen year old Nicole Delien, who allegedly have been
sleeping straights 64 days. She did wake up for couple hours each day to eat which
she couldn’t recall at all—in a sleep walking state. She was diagnosed with the
disease called Kleine-Levein Syndrome (KLS.) This syndrome is categorized by repeated
and unusually long occurrences of excessive sleepiness that affects behavioral
and cognitive abilities and hunger, according to the Center for Narcolepsy
at the Stanford University School of Medicine. The condition normally affects adolescent
Apparently if the syndrome is present, it could last for
days even months, causing the victim to be dysfunctional from normal
routines/activities. It is also noted that individuals who suffer from this
disease are mostly bedridden and unable to communicate—they are either
sleeping or in sleeping walking states.
According to www.cbsnews.com, “No diagnostic medical test can confirm the disease, with patients showing normal results on brain scans, EEGS, and cerebrospinal fluid tests. Stanford University School of Medicine said the rarity of KLS, compared to the high-frequency of flu-like illnesses suggests some patients may be genetically predisposed to the disease.” –cited from http://www.cbsnews.com/8301-204_162-57552053/17-year-old-pa-woman-battles-sleeping-beauty-syndrome/
According to www.cbsnews.com, “No diagnostic medical test can confirm the disease, with patients showing normal results on brain scans, EEGS, and cerebrospinal fluid tests. Stanford University School of Medicine said the rarity of KLS, compared to the high-frequency of flu-like illnesses suggests some patients may be genetically predisposed to the disease.” –cited from http://www.cbsnews.com/8301-204_162-57552053/17-year-old-pa-woman-battles-sleeping-beauty-syndrome/
Nicole and her parents are trying to spread the awareness
about this Sleeping Beauty Syndrome and so is this stop.
Journey of Life
I heard about her last night on my way home on cosmo radio... wild!
ReplyDeleteIndeed!
DeleteThat is crazy!! I can't imagine having to deal with something like that. I am so glad you are spreading awareness through your blog.
ReplyDeleteKathy
http://gigglingtruckerswife.blogspot.com
Thank you Kathy. I can't imagine that either ... too wicked!
DeleteVery weird! I'm always amazed at how many strange illnesses there are in the world - fortunately, most of them are very rare.
ReplyDeleteI guess it is a good thing that they are rare.
DeleteI can't even imagine! Wild! I wonder did she keep a dream book?
ReplyDeleteIt would be interesting to know if she dreams at all...
DeleteI've heard of this before when I was studying psychology...it's very peculiar!
ReplyDeleteIndeed. I really hope not many people has this disease and they would find the cure soon.
DeleteBetter not let my teens hear about this--they'll want out of school for a month!! LOL. Okay seriously, as a parent, I would be scared to death if that were my child. What is the timeframe for recovery??
ReplyDeleteMy hubby said this is too scary to tell my girls about. :-) Perhaps he worries that they would want to sleep in ? :-)
DeleteI have no clue about the time frame. From what I have read, she uses the prescribed medicine to lapse the sleeping time.